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Grace Nolan, aged 11, became ill on a family holiday in Portugal in Easter 1999. She started to get nosebleeds and cough up blood but tests had been inconclusive and doctors were unable to identify what was wrong. Recalling how his maternal grandmother also had nosebleeds, Mike spoke to a relative, who said she was believed to have suffered from a condition called telangiectasia. Mike googled the word and discovered the existence of Hereditary Hemorrhagic Telangiectasia (HHT) a genetic disorder which affects the formation of blood vessels in one in an estimated 5, 000 people. Next he tracked down the HHT Foundation in America, which recommended Grace be screened at a special centre in London. An appointment was arranged for December but Grace never made it to London she died on November 23.Mike, her father, set up the Grace Nolan Foundation which has since raised and contributed millions of euro to research into HHT. Next he organised a national letter-writing competition in memory of his daughter. And so it began the Dear Grace letters as they are known, have since become a hallmark of classroom life for fifth and sixth-class pupils in primary schools from Donegal to Cork.
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